Wednesday, 21 October 2009

quick update...

...can wait for one for months and along come two! scan results yesterday not ideal. CT showed both liver and lungs a little worse, which apparently to be expected after the chemo break. silver lining, apparently the liver tumors seem a little 'flatter', which may indicate the new chemo has started to work.

MRI has explained spazzy pirate eye. got a new tumor on back of skull (BONE NOT BRAIN)-the occipital bone to be pinickity. this is pressing on the occipital lobe which is responsible for lots of visual processing hence the problem. so having a 5 day course of radiotherapy on back of head, the first of which just had. was SO much more stress free than all treatment so far, the staff were lovely and all it involved was lots of drawing in red pen on the back of my head (did make mum check they weren't just drawing rude pics) and then firing complately painless lasers at me more 5 minutes. can cope with 4 more days of that.

apparently will lose the laser fried patch of hair pretty quickly so it might either be time for the big shave (have already reduced to boy short hair) or investigating to see if they do a sparkly range of jewish style skull caps...

still getting my head round all this obviously. little things like the fact that dr cool said if it wasn't causing any side effects he'd be happy to leave it to chemo to deal with are reassuring. i just wish the bloody thing would stop spreading and stay in the one place! i know i'm a woman and sposed to be able to multitask and all, but still-there are limits lol! prob gonna have a full bone scan in the near future- a previous mri showed up a little sth further down my spine that may or not be relevant. the good thing is the chemo (as long as this cocktail behaves itself!) should be whizzing up and down the body as a type, mopping up all evil cells WHEREVER they may be whether or not we currently know about them.

big hugs xxx


  1. Hi there, thanks for the updates, and beautiful picture up the top there. I got a lovely email from my chemo-angel buddy's mum, she said, my buddy is loving my gifts and particularly my letters (stories about my family). Sounds like you are having a tough time with treatment, I hope that chemo does its job and NOW! Keep writing and letting us know how you are doing. lots of love, juliet x

  2. Hey!

    Have been trying to post here forever but it hates me, hope it works this time.

    Sounds like you're having a rollercoaster of a time right now and I can't even imagine how insane it must be right now.

    Still rooting for you, sending good vibes and love from afar. Hang in there.


  3. Hey Clare,

    You sound very upbeat and positive which is good to hear. Hope you are okay. Thinking of you and I love the fact you are writing about it all and confronting the ordeal with humour and great bravery. Sending you all my love... xxx

  4. Hi Clare, just wanted to tell you my buddy graduated. She is back at school and getting on with her life. I will definitely sign up again and thanks for introducing me to chemo angels.